I can’t help but think that a lot of internalizing and
worrying contributed to my illness. After all, “they” say that stress is a huge
contributor to any illness. When I was
diagnosed, I couldn’t help but wonder what I had done wrong to get this
disease, and why didn’t I find the lump sooner? My general doctor pretty much
said it was dumb luck, and my onco says that I got it because I got it. It’s
just one of those things.
On May 7 I found out that the disease is the worst it’s ever
been, with a lime-sized tumor on my liver, and new bone mets in my spine and
lumbar. My tumor marker soared to 1075. My onco started me on a new drug the
same day (Navelbine) but I still have to wait and see if it’s going to help me.
I get the treatment every week for 3 weeks, then I get a week off. I just
completed my second cycle of it Tuesday (6 treatments total so far). They
checked my tumor marker and I found out Tuesday 6/18 that it’s down to 1027 – the
count was taken from my blood work done right before my 5th
treatment on Tuesday 6/11. That’s not much of a decrease, BUT it’s a decrease
and that gives me hope that I’m going in the right direction. Honestly after
only 4 treatments, to see an almost 50 point drop makes me feel pretty good. I
won’t get scanned again until the end of July (I get a CAT scan of the chest,
abdomen and pelvis every three months). My doctor was worried that the small
drop would make me more anxious, but I told him that I would take any piece of
encouragement I could get, not matter how small.
The time between May 7 and now has been tough regarding
anxiety. I’ve prayed a lot for peace, and God has blessed me with comfort and
hope during this time. However, panicky moments creep in. When I think about
the size of the tumor on my liver, it scares me to death. I keep waiting for
the other shoe to drop – am I going to start hurting? Surely a tumor that size
would cause some kind of discomfort. Am I going to wake up one morning and have
yellow skin and nails because my liver is failing? What’s going to happen??
Then there is bone pain to contend with. For a few days, my other leg started
hurting, and all I could think about was the hell I went through with my left
leg, and I wondered if I would have to do it all over again with my right leg
too. It must have been weather related or a just a fluke, because praise God,
it’s not hurting anymore. Sometimes I have a sense that something is “there” on
my right side, where my liver is. It’s not pain, just an awareness that
something is there. But when I press my side, I can’t feel anything. No pain,
no lumps, no bloating, so I can’t help but wonder if that’s my anxiety making
me feel a presence there. I pray every day (sometimes many times a day) that
God protect me from abdominal/side pain and that I can still eat good. I love
to eat, but there are times when my anxiety gets bad, and my mouth and throat dry
up like a desert, making it hard to eat and swallow. There have been days over
the past month when I’ve had to force myself to eat, gagging after every bite,
not because I’m in pain or nauseated, but I’m too anxious to sit still and eat.
I’ve prayed for a growling stomach and some peace so I can eat, and sure
enough, within the hour, my stomach will growl and I’m able to eat a decent
meal. God is always here, carrying me through it.
I’m still determined to beat this if it’s God’s will. I pray
for strength, comfort, and healing every day, many times a day. I don’t want to
be another statistic. So many stage iv metastatic cancer fighters do well for
awhile, and then they get bad again, then worse, and then they die. I lost a
friend a few months ago to this horrible disease and she was only 48. I want
God to lead me wherever he wants me to go, whenever he wants me to go, sick or
well, so I can help other people through this. The one thing I needed so badly
when I was first diagnosed was other stage iv metastatic cancer fighters around
to say, “I’m making it through this and you can too, with God’s help.” I know
one other fighter who has BC with similar metastases, and she’s struggling
pretty badly right now. She’s getting ready to go through some risky treatment,
dangerous enough to require an overnight hospital stay after each chemo. I’m
praying for her every day, sometimes 2-3 times a day. I’m sure she’s really
worried and scared.
My dream is to be healed so I can go to nursing school. I
want to become an RN, specializing in oncology so I can hold the hands of the
sick, and hopefully give them some comfort and hope. I pray that God lead me in
the right direction so I can give back to all of nurses that have helped me. My
doctors have been awesome, but it’s the nurses that do a lot of the “dirty
work” and comforting. Every nurse I’ve had interactions with since I’ve been
sick has been gentle, positive, and kind. That means a lot when you feel scared
and lost.
I don’t laugh off anxiety anymore. It’s real and it’s scary.
I’m not ashamed to admit that I’m afraid and that I worry about stuff, and I am
not an actor anymore. When I’m tired, I’m tired. When I’m scared, I’m scared. I
need my energy to fight disease, not to act like everything is okay all the
time. This disease has brought me to my knees – figuratively. I can't
physically get on my knees right now haha. I’ve never been so scared in my
life. If you have a loved one fighting anxiety for whatever reason, please be
patient with them, and pray for them.
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